"If you have knowledge, let others light their candles in it."
What have I learned in all this time living with a multitude of Chronic Challenges? No one thing will work to heal you, there's no "Chronic Illness for Dummies" book to help you, and nothing will change unless you do...
I've also learned that the Chronically Ill & disabled communities, on top of being disadvantaged by society, are targeted by ableism, gaslighting, skepticism, bank breaking schemes, and soul crushing realities.
I felt lost in this darkness until I found a few people in situations similar to mine saying,
"Hey! Here's my struggle. This is what I've found works, and this is my Truth - let's C&C *compare & contrast* some notes and see if we can't discover something together."
So I'm here to tell you my truth as a friend. Life can be adapted to these chronic circumstances we find ourselves in - and it all starts with you & me. It's a small spark but any large fire is born from a single spark. These chronic challenges can be so isolating if we let them. Instead, let's come together as a community, figuring our way through it, together.
Life with Chronic Conditions doesn't get easier, we get stronger.
Welcome To It.
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First Of Her Name
After 3 years of intense battle plagued by multiple mysterious illnesses, she collapsed. Mentally, physically, emotionally - she had reached her breaking point. Unable to even fall to her knees, she laid down on her horizontal throne of pillows and sobbed.
Is that it, life?!
She shouted to the sky one night as the pain was overwhelming and the diagnosis of JHS had just been confirmed. Continuing to shout at an empty universe she bellowed,
Is this f*ckin' it? Because I handled everything else you threw at me, but if THIS COULD BE F*CKING IT, THAT WOULD BE FANTASTIC.
And it was there, lying flat in a bundled body of pain like barbed wires, that your Chronic Illness Warrior Hero, Cryo Kween, First of Her Name, was born. She lay in her pain now knowing she could handle it, and whatever else came at her because now she had the knowledge. The knowledge of different treatments & healing, the willingness to try everything, knowing what worked & didn't, the power of positive thinking, basics of holistic nutrition, how emotions manifest as pain in the body - all of these pieces of knowledge, sewed together as the hinged layers of her battle armor. Dressed in her knowledge and ready for the longterm battle, The Warrior Kween had arrived. Self-coronated, she gave an oath to reign over the mind & body with peace, kindness, and positive self-talk; her constant goal to bring forth balance, help others on their journey, and to live her best life possible.